Las Vegas Hemophilia Walk & 5K Planned for September 24, 2016

Las Vegas Hemophilia Walk

Las Vegas Hemophilia Walk & 5K Planned for September 24, 2016

Hundreds of participants, including walkers, runners, individuals and teams, are expected to take part in the Las Vegas Hemophilia Walk & 5K on Saturday, September 24, 2016 at Floyd Lamb Park at Tule Springs in Northwest Las Vegas.  

The Hemophilia Walk & 5K is the largest fundraising event for the Nevada Chapter of the National Hemophilia Foundation. The event promotes awareness of the many types of inherited bleeding and clotting disorders and also funds the chapter’s efforts advocating and educating on behalf of those diagnosed with hemophilia, von Willebrand disease and other bleeding disorders. 

To register for the Las Vegas Hemophilia Walk & 5K, go to walk.hemophilia.org/lasvegasreno Registration begins at 7:30 a.m. at Floyd Lamb Park at Tule Springs, with the walk/run beginning at 8:30 a.m.  Attendees will enjoy a light pre-walk breakfast, music, fun activities for children and a team t-shirt contest.  Admission to Floyd Lamb Park is free for all walk participants. For additional registration questions, please contact Anne at 702-564-4368 or amcguire@hemophilia.org 

All funds raised through the event will stay in Nevada, with the majority of proceeds being used to send children with inherited bleeding disorders —- along with siblings — to a special, medically supervised summer camp at no cost.  Camp Independent Firefly offers kids, aged 7 to 17, the chance to interact with others like themselves and to feel supported while also learning independence in how they live with their life-long condition, for which there is no cure.

“Camp Independent Firefly is a wonderful asset because it offers these kids the kind of freedom they usually don’t have,” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation.  “So often, kids with inherited bleeding disorders are discouraged from being too active due to concerns about their safety or causing a possible bleed.  With medical staff on site the entire week, Camp Independent Firefly is a safe and uplifting place filled with adventure.”

Inherited Bleeding Disorders Facts:

  • More than 20,000 families in the United States are affected by inherited bleeding disorders
  • Those with inherited bleeding disorders lack a protein that allows their blood to clot normally
  • To control bleeds, a medicine called factor is often infused
  • Hemophilia is most often passed from mother to son, but girls can also be affected
  • Von Willebrand disease affects males and females equally
  • One percent of the population is affected by von Willebrand disease, but one in 50 people may not know they have it
The Somerset Academy of Las Vegas Cross Country team was first off the starting line for last year’s Las Vegas Hemophilia Walk and 5K at Floyd Lamb Park at Tule Springs. The hemophilia walks in Las Vegas and Reno raised more than $61,000 to support advocacy and education programs in Nevada for those affected by inherited bleeding disorders. The majority of funds will be set aside to send kids, aged 7 to 17, to a special medically supervised summer camp at no cost.
The Somerset Academy of Las Vegas Cross Country team was first off the starting line for last year’s Las Vegas Hemophilia Walk and 5K at Floyd Lamb Park at Tule Springs. The hemophilia walks in Las Vegas and Reno raised more than $61,000 to support advocacy and education programs in Nevada for those affected by inherited bleeding disorders. The majority of funds will be set aside to send kids, aged 7 to 17, to a special medically supervised summer camp at no cost.

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Las Vegas Hemophilia Walk & 5K Planned September 26 at Floyd Lamb Park

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National Hemophilia Foundation

Las Vegas Hemophilia Walk & 5K Planned September 26 at Floyd Lamb Park

 Get those walking and running shoes ready! The Nevada Chapter of the National Hemophilia Foundation (NHF Nevada) is now registering participants for the upcoming Hemophilia Walk and 5K taking place on Saturday, September 26, 2015 at the scenic Floyd Lamb Park at Tule Springs. NHF Nevada has set a $57,000 fundraising goal.

All funds raised by participating walkers and runners will stay in Nevada and will support ongoing programs for those affected by inherited bleeding disorders, including Hemophilia and von Willebrand Disease, which is the most common inherited bleeding disorder in the United States.

The Las Vegas Hemophilia Walk & 5K begins at 8:30 a.m., with registration open at 7:30 a.m. at Floyd Lamb Park at Tule Springs, 9200 Tule Springs Road, Las Vegas, 89131. Registration is now open at www.hfnv.org or by calling 702-564-4368.

“We had a great turnout last year and raised more money than ever before,” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “That increase has allowed us to send more kids to Camp Independent Firefly, at no cost to them, and to increase our program and assistance to clients in need.”

Again this year, the Hemophilia Treatment Center of Nevada is the presenting sponsor of the Walk & 5K. It provides diagnosis, treatment, medical referrals and comprehensive clinics to all people with inherited bleeding and clotting disorders in Las Vegas, Reno and throughout the state. It is the only federally recognized hemophilia treatment center in the state.

NHF Nevada is a 501(c)(3) nonprofit organization founded in 1990 to meet the vast educational and support needs of the bleeding disorders community. NHF Nevada provides a number of unduplicated services that include support programs for the newly diagnosed, youth and Spanish speaking communities. In addition, the organization presents educational conferences and advocates on behalf of those affected.

Because inherited bleeding disorders such as hemophilia are expensive to treat and require life-long management, it places a large financial burden on individuals and families. NHF Nevada also provides financial assistance programs to help provide medicine and basic living needs.

All walkers or runners who collect more than $25 in walk pledges will receive a 2015 Hemophilia Walk t-shirt.

A Hemophilia Walk & 5K is also planned in Reno on Saturday, September 12, 2015 at Virginia Lake Park at 1980 Lakeside Drive. For additional information, please go to www.hfnv.org or call 702-564-4368.

NHF Nevada Twitter

NHF Nevada Facebook

The Las Vegas Hemophilia Walk & 5K is planned for September 26, 2015 at Floyd Lamb Park. Funds raised by the Nevada Chapter of the National Hemophilia Foundation are used to send children with inherited bleeding disorders, as well as their siblings, to a special medically supervised summer camp for free. The chapter also operates a number of support groups for those affected, as well as their families, organizes statewide seminars on issues important to those in the inherited bleeding community, and provides emergency financial assistance.
The Las Vegas Hemophilia Walk & 5K is planned for September 26, 2015 at Floyd Lamb Park. Funds raised by the Nevada Chapter of the National Hemophilia Foundation are used to send children with inherited bleeding disorders, as well as their siblings, to a special medically supervised summer camp for free. The chapter also operates a number of support groups for those affected, as well as their families, organizes statewide seminars on issues important to those in the inherited bleeding community, and provides emergency financial assistance.

Nevada Chapter of the National Hemophilia Foundation Surpasses 2014 Walk & 5K Fundraising Goal!

Hemophilia

Nevada Chapter of the National Hemophilia Foundation Surpasses 2014 

Walk & 5K Fundraising Goal!

Nevada’s 2014 Hemophilia Walk and 5K is the Chapter’s Most Successful

The 2014 Hemophilia Walk and 5K will go into the record books! For the first time in Nevada, due to the overwhelming support of sponsors and walk teams, the Nevada Chapter of the National Hemophilia Foundation’s Hemophilia Walk & 5K surpassed the $50,000 fundraising mark!  Additionally, this was the first year a Hemophilia Walk and 5K was also held in Reno.

“It has been incredible to see the support and awareness of our walk, and our mission, grow in the state of Nevada,” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “We serve the entire state so these funds will benefit those in Las Vegas and Reno and the smaller communities we serve including Winnemucca, Ely and Elko.”

More than 400 people attended the Las Vegas event at Floyd Lamb Park at Tule Springs and 130 attended Reno’s first Hemophilia Walk at Virginia Lake Park.

In Las Vegas, Team Emily & AJ, along with Team Captain Alison Bartko, were recognized as the Top Fundraising Team for raising more than $8,000 in contributions for the walk. Team Emily & AJ is named after Alison’s children, both of whom have severe Hemophilia.

Funds raised will be used in a number of ways.  Every year, the Nevada Chapter of the National Hemophilia Foundation sends children with an inherited bleeding disorder and their siblings, to a medically supervised camp at no cost.  The kids learn many things about their disease, how to manage it and how to gain independence in spite of their condition. They also get the chance to have fun in an outdoor setting with those who understand their disease. Funds will also be used to underwrite support groups for the newly diagnosed and their families.

Those with inherited bleeding disorders such as Hemophilia and von Willebrand disease, lack a protein which allows their blood to clot normally. Depending on the severity of their condition, those affected rely on infusions of “factor” given daily, weekly or as needed to stop or prevent a devastating blood loss.

Both walks were sponsored by the Hemophilia Treatment Center of Nevada which provides diagnosis, treatment, medical referrals and comprehensive clinics to all people with inherited bleeding and clotting disorders in Las Vegas, Reno and throughout the state.  It is the only federally recognized hemophilia treatment center (HTC) in the state.

NHF Nevada was founded in 1990 and helps meet the vast education and support needs of the bleeding disorders community in Nevada. There are approximately 20,000 people living with Hemophilia in the United States. It is an expensive disease where life-long management of Hemophilia places a large financial burden on individuals and families. Additionally, NHF Nevada provides services to those affected by von Willebrand disease, and clotting disorders such as Thrombophilia, which causes the blood to clot excessively. Every dollar raised at this event will help the bleeding disorder community in Nevada. 

Hemophilia Walk & 5K 2014

 

Nevada Walk & 5K for Hemophilia On September 27 In Las Vegas and Reno

Nevada Walk

National Hemophilia Foundation

Nevada Walk & 5K for Hemophilia On September 27 In Las Vegas and Reno

For the first time in its history, The Nevada Chapter of the National Hemophilia Foundation will host two Hemophilia Walks on the same day to help raise critical funds and awareness for those Nevadans affected by inherited bleeding and clotting disorders including Hemophilia and von Willebrand disease.

A one mile walk and 5K are scheduled in Las Vegas and Reno on September 27, 2014 with goals to raise at least $50,000 in each city. This will be the first ever Hemophilia Walk held in Reno.

The Nevada Chapter of the National Hemophilia Foundation (NHF Nevada), a 501(c)(3) nonprofit organization, will use the funds raised to send children with inherited bleeding disorders to a special medically supervised camp at no cost. Additional funds will also support ongoing programs that include support groups for the newly diagnosed and their families, a youth support group dealing with the challenges of managing their condition, and financial assistance programs to help provide medicine and basic living needs.

“We’re committed to helping those with inherited bleeding disorders and their families no matter where they are in Nevada and these walks are essential to complete that mission” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “It’s exciting to organize our first walk in Reno and to keep the momentum going in Las Vegas where our walk has received incredible support.”

The Las Vegas Hemophilia Walk & 5K begins at 8:30 a.m., on-site registration at 7:30 a.m., at Floyd Lamb Park at Tule Springs, 9200 Tule Springs Road, Las Vegas, 89131. Registration is now open at www.hfnv.org or by calling (702) 564-4368.

The Reno Hemophilia Walk & 5K begins at 10:00 a.m., on-site registration at 9:00 a.m., at Virginia Lake Park, 1980 Lakeside Drive, Reno, 89509. Registration is now open at www.hfnv.org or by calling (702) 564-4368.

Both walks are sponsored by the Hemophilia Treatment Center of Nevada which provides diagnosis, treatment, medical referrals and comprehensive clinics to all people with inherited bleeding and clotting disorders in Las Vegas, Reno and throughout the state. It is the only federally recognized hemophilia treatment center in the state.

NHF Nevada was founded in 1990 and helps meet the vast education and support needs of the bleeding disorders community in Nevada. There are approximately 20,000 people living with Hemophilia in the United States. It is an expensive disease where life-long management of Hemophilia places a large financial burden on individuals and families. Additionally, NHF Nevada provides services to those affected by von Willebrand disease, which also prevents from clotting, and clotting disorders such as Thrombophilia, which causes the blood to clot excessively. Every dollar raised at this event will help the bleeding disorder community in Nevada.

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The 2013 Hemophilia Walk & 5K in Las Vegas raised more than $50,000, a record for the Nevada Chapter of the National Hemophilia Foundation.  The nonprofit organization provides education, advocacy, and many types of assistance to those with inherited bleeding and clotting disorders such as Hemophilia and von Willebrand disease.The 2014 Hemophilia Walk & 5K will take place on September 27, 2014 in Las Vegas. For the first time the foundation is also holding a walk in Reno on the same day. For additional information, www.hfnv.org.
The 2013 Hemophilia Walk & 5K in Las Vegas raised more than $50,000, a record for the Nevada Chapter of the National Hemophilia Foundation. The nonprofit organization provides education, advocacy, and many types of assistance to those with inherited bleeding and clotting disorders such as Hemophilia and von Willebrand disease.The 2014 Hemophilia Walk & 5K will take place on September 27, 2014 in Las Vegas. For the first time the foundation is also holding a walk in Reno on the same day. For additional information, www.hfnv.org.

Fremont Street Experience to Host Celtic Fest in Celebration of the 10th Anniversary of the Las Vegas Highland Games

Fremontst

Fremont Street Experience to Host Celtic Fest in Celebration of the 10th Anniversary of the Las Vegas Highland Games
Grab your clan and head to Downtown Las Vegas for free Celtic entertainment April 11 & 12

Fremont Street Experience will host Celtic Fest to celebrate the 10th anniversary of the Las Vegas Highland Games taking place at Floyd Lamb Park at Tule Springs in northwest Las Vegas on April 12-13. To kick-off the celebration, Fremont Street Experience invites Las Vegas locals and visitors to celebrate with free Celtic entertainment on Friday, April 11 and Saturday, April 12.

Each night at 8:15 p.m., The LA Scots pipe band will start the festivities by parading from Golden Nugget to the 1st Street Stage where they will perform. Los Angeles Scottish Pipe Band, popularly known as The LA Scots, is the premier pipe band of the United States and a world class competitor.

Live bands and entertainers will keep the party going throughout the night, headlined by 1916, Wicked Tinkers, Sharon Lynn’s Celtic Crown Dancers and Celtic Music from Golden Bough.

The Las Vegas Celtic Society began the annual Las Vegas Highland Games celebration 10 years ago to honor Celtic culture and tradition. Highland Games are a unique mix of sporting, cultural and social events and usually include field and track, piping and Highland dancing competitions, as well as ‘heavy events’ like tug-o-war, hammer throw and caber toss.

Celtic Fest at Fremont Street Experience Entertainment Schedule:

Friday, April 11 & Saturday, April 12, 1st Street Stage

Celtic Music from Golden Bough 7:00-7:45 p.m. (Saturday only)
The LA Scots 8:15-9:00 p.m.
Sharon Lynn’s Celtic Crown Dancers – 9:15-10:00 p.m.
Wicked Tinkers – 10:15-11:00 p.m.
1916 – 11:10 p.m.-midnight
1916 – 12:10-1:00 a.m.


About Fremont Street Experience
Fremont Street Experience, a five-block entertainment district located in historic downtown Las Vegas features Viva Vision, the world’s largest video screen – 1,500 feet long, 90 feet wide and suspended 90 feet above the urban pedestrian mall. Viva Vision features nightly spectacular light and sounds shows with 12.5 million LED lights and a 550,000-watt sound system.  Fremont Street Experience is a one-of-a-kind venue that includes free nightly concerts and entertainment on three stages. With direct pedestrian access to 8 casinos, more than 60 restaurants and specialty retail kiosks, Fremont Street Experience attracts over 17 million annual visitors. Visit online at www.vegasexperience.com, Facebook: http://www.facebook.com/FSE89101
or Twitter: https://twitter.com/FSELV
.

Annual Walk & 5K for Hemophilia on September 21

Hemophilia

5th Annual Nevada Walk & 5K for Hemophilia is September 21

Community Invited to Support Those Affected by Bleeding and Clotting Disorders

Come join the Las Vegas community as they take a step to raise critical funds and awareness for those suffering from bleeding disorders in Nevada.

The Nevada Chapter of the National Hemophilia Foundation (NHF Nevada) is hosting their fifth annual Nevada Walk for Hemophilia, helping people suffering from bleeding and clotting disorders in the local community.  The one mile walk and 5K will take place at Floyd Lamb Park, Saturday, September 21, 2013.  Check-in begins at 7:30 a.m. and the Walk begins at 8:30 a.m.  Floyd Lamb Park is located at 9200 Tule Springs Rd. near Durango and Racel St.

“We are so excited about this year’s event and couldn’t ask for a more beautiful place to walk than Floyd Lamb Park,” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “Here in Southern Nevada, we are committed to helping every person in the state improve the quality of care and life for people with hemophilia, von Willebrand disease and clotting disorders and we need the community’s support to continue to do so.”

NHF Nevada is a nonprofit consumer advocacy and service organization founded in 1990 that helps meet the vast education and support needs of the bleeding disorders community in Nevada.  They also provide a camp for kids specifically designed for youth with bleeding disorders.  In addition, NHF Nevada provides services to those affected by von Willebrand disease, which also prevents blood from clotting, and clotting disorders such as thrombophilia which causes the blood to clot excessively.

Currently there are 20,000 people living with hemophilia in the United States.  It’s an expensive disease where life-long management of hemophilia places a large financial burden on individuals and families. Every dollar raised at this event will help support the bleeding disorder community in Nevada.

Sign up today for the walk or 5K here: http://bit.ly/1ahrIjwFor further information about this event, please contact Anne McGuire at amcguire@hemophilia.org or (702) 564-4368.  The Nevada Chapter of the National Hemophilia Foundation is located at 7473 Lake Mead Blvd., Suite 100, Las Vegas, NV 89128.

Attendees will enjoy a light pre-walk breakfast, music, fun activities for the children and a team t-shirt contest.  There is free admission and parking for all attendees.

An enthusiastic start to last year's Hemophilia Walk organized by the Nevada Chapter of the National Hemophilia Foundation. This year's walk is scheduled for Saturday, September 21, 2013 at Floyd Lamb Park 9200 Tule Springs Rd. (near Durango and Racel St)  To register for the walk go to http://www.hemophilia.org/walk/.
An enthusiastic start to last year’s Hemophilia Walk organized by the Nevada Chapter of the National Hemophilia Foundation. This year’s walk is scheduled for Saturday, September 21, 2013 at Floyd Lamb Park 9200 Tule Springs Rd. (near Durango and Racel St) To register for the walk go to http://www.hemophilia.org/walk/.

 

Caber Toss World Record Attempt and Pipe Band Parade Featured in Celtic Fest at Fremont Street Experience

Caber Toss World Record Attempt and Pipe Band Parade
Featured in Celtic Fest at Fremont Street Experience

Get Your Scottish, Irish and Welsh On with Free Concerts
Downtown Las Vegas April 13 & 14

In association with the 8th Annual Las Vegas Highland Games taking place this weekend at Floyd Lamb Park at Tule Springs in northwest Las Vegas, Fremont Street Experience invites Las Vegas locals and visitors to Get Your Scottish, Irish and Welsh On with free entertainment downtown on Friday, April 13 and Saturday, April 14. The Las Vegas Celtic Society began the annual celebration to honor Celtic culture and tradition.

Fremont Street Experience will join the celebration by hosting free concerts along with pipe and drum parades both days. On Friday at 7:30 p.m., the Desert Skye Pipe Band and the 3rd Marine Corps Aircraft Wing Band and Saturday at 8:30 p.m., the US Champion Pipe Band the L.A. Scots and the 3rd Marine Corps Aircraft Wing Band will parade five blocks from Hennessey’s to the 1st Street Stage.

Additionally, the Scottish American Athletic Association is going to attempt a World Record Caber Toss with 32 caber tossers at the 1st Street Stage on Friday at 8:10 p.m. The current record is 30. The Caber Toss is a traditional Scottish athletic event involving the tossing of a large wooden pole called a caber. This sport is said to have developed from the need to toss logs across narrow chasms or rushing rivers in order to get across. A caber is typically 18 feet long and weighs 100 pounds or more.

Fremont Street Experience will also host live concerts throughout the weekend. On Friday and Saturday night, the featured 1916 band will play their signature sound that blends hard rock with a kilted flair, along with the Wild Celts, a local Celtic rock band. Saturday night, Finnegan’s Wake will hit the stage with their unique blend of Irish music infused with all the attitude and swagger of a rock band.

Celtic Fest at Fremont Street Experience Entertainment Schedule:

Friday, April 13 

Bag Pipe Parade                                                     7:30 p.m.                        Start at Hennessey’s

World Record Caber Toss                                     8:10 p.m.                        1st Street Stage

LA Scots Pipe Band                                               8:30 – 9 p.m.                  1st Street Stage

3rd Marine Corps Aircraft Wing Band               9:10 – 9:45 p.m.            1st Street Stage

1916                                                                        10 p.m. – Midnight         1st Street Stage

Wild Celts                                                               8 – 11 p.m.                     3rd Street Stage

 

Saturday, April 14

Bag Pipe Parade                                                    8:30 p.m.                         Start at Hennessey’s

1916                                                                        8 – 9 p.m.                        1st Street Stage

LA Scots Pipe Band                                              9 – 9:30 p.m.                   1st Street Stage

3rd Marine Corps Aircraft Wing Band              9:30 – 10 p.m.                 1st Street Stage

1916                                                                        10 p.m. – Midnight         1st Street Stage

Kris Colt and the Black Rose Band                    Midnight – 1 a.m.            1st Street Stage

Finnegan’s Wake                                                  8 – 10 p.m.                       3rd Street Stage

Wild Celts                                                             10 p.m. – 1 a.m.               3rd Street Stage

Fremont Street Experience is a five-block entertainment complex located in historic downtown Las Vegas. Fremont Street Experience features Viva Vision, the world’s largest video screen which is 1,500 feet long, 90 feet wide and suspended 90 feet above the urban pedestrian mall. Viva Vision features nightly spectacular light and sounds shows with 12.5 million LED lights and a 550,000-watt sound system. Fremont Street Experience is a one-of-a-kind venue that includes free nightly concerts and entertainment on two stages. With direct pedestrian access to 10 casinos, more than 60 restaurants and specialty retail kiosks, Fremont Street Experience attracts over 17 million annual visitors. Fremont Street Experience can be found online at www.vegasexperience.com