Nevada Chapter of the National Hemophilia Foundation Raises $60,000 at Las Vegas and Reno Walks/5Ks

Las Vegas Hemophilia Walk

Nevada Chapter of the National Hemophilia Foundation Raises $60,000 at Las Vegas and Reno Walks/5Ks

 

September 27, 2016 – More than 500 walkers and runners took part in Hemophilia Walks and 5K events in Las Vegas and Reno in September, allowing the Nevada Chapter of the National Hemophilia Foundation to raise more than $60,000 during the nonprofit organization’s largest fundraisers of the year.

The foundation, a 501(c)(3) nonprofit organization, will use the funds to send children and their siblings to a medically supervised summer camp, known as Camp Independent Firefly, which allows children with inherited bleeding disorders to participate in outdoor activities while having medical personnel nearby should they be needed. The Nevada Chapter of the National Hemophilia Foundation underwrites the cost of the weeklong camping adventure, so families can send their kids to camp for free.

Additional funds raised through the Walks will help families in need of emergency assistance, including access to life-saving medication or emergency living expenses. Without medical insurance, medication to stop or prevent a life-threatening bleed is extremely expensive.

“The amount of support we have received from our dedicated walk teams, supportive businesses and community leaders is humbling,” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “Without the support of these groups we simply cannot offer the services, educational and advocacy programs that are important to the inherited bleeding disorders community.”

This year’s top fundraising teams include: The Las Vegas HTC All Stars which brought in $7450, followed by Team Emily and AJ raising $6,100. In Reno, the Reno HTC All Stars took top team honors bringing in $3590 in donations.

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 (Photo Credit: Claudia Groenlykke) More than 400 runners and walkers took part in the Las Vegas Hemophilia Walk and 5K on Saturday, September 24, 2016. at Floyd Lamb Park at Tule Springs. The annual event raises funds and awareness of those with inherited bleeding disorders. The Las Vegas and Reno Walks raised a combined $60,000 which will be used to send children with inherited bleeding disorders, and their siblings, to a special medically supervised summer camp for free. Additional funds will provide emergency assistance to families affected by inherited bleeding disorders.

About the Nevada Chapter of the National Hemophilia Foundation
The mission of the Nevada Chapter of the National Hemophilia Foundation is to improve the quality of care and quality of life for people with hemophilia, von Willebrand Disease and other inherited bleeding disorders. Founded in 1990 as the nonprofit Hemophilia Foundation of Nevada, the chapter merged with the National Hemophilia Foundation in 2011. It is the only educational, advocacy and support organization working on behalf of Nevada’s inherited bleeding disorder community. Services provided by the chapter include emergency financial assistance, sponsorship of seminars on issues important to the bleeding disorders community, dissemination of information as well as awareness of the complications of the disease to the general public, media and healthcare providers. In addition, the chapter publishes a newsletter to keep members better informed. Additional information can be found at www.hfnv.org or by calling (702) 564-4368.

Annual Walk & 5K for Hemophilia on September 21

Hemophilia

5th Annual Nevada Walk & 5K for Hemophilia is September 21

Community Invited to Support Those Affected by Bleeding and Clotting Disorders

Come join the Las Vegas community as they take a step to raise critical funds and awareness for those suffering from bleeding disorders in Nevada.

The Nevada Chapter of the National Hemophilia Foundation (NHF Nevada) is hosting their fifth annual Nevada Walk for Hemophilia, helping people suffering from bleeding and clotting disorders in the local community.  The one mile walk and 5K will take place at Floyd Lamb Park, Saturday, September 21, 2013.  Check-in begins at 7:30 a.m. and the Walk begins at 8:30 a.m.  Floyd Lamb Park is located at 9200 Tule Springs Rd. near Durango and Racel St.

“We are so excited about this year’s event and couldn’t ask for a more beautiful place to walk than Floyd Lamb Park,” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “Here in Southern Nevada, we are committed to helping every person in the state improve the quality of care and life for people with hemophilia, von Willebrand disease and clotting disorders and we need the community’s support to continue to do so.”

NHF Nevada is a nonprofit consumer advocacy and service organization founded in 1990 that helps meet the vast education and support needs of the bleeding disorders community in Nevada.  They also provide a camp for kids specifically designed for youth with bleeding disorders.  In addition, NHF Nevada provides services to those affected by von Willebrand disease, which also prevents blood from clotting, and clotting disorders such as thrombophilia which causes the blood to clot excessively.

Currently there are 20,000 people living with hemophilia in the United States.  It’s an expensive disease where life-long management of hemophilia places a large financial burden on individuals and families. Every dollar raised at this event will help support the bleeding disorder community in Nevada.

Sign up today for the walk or 5K here: http://bit.ly/1ahrIjwFor further information about this event, please contact Anne McGuire at amcguire@hemophilia.org or (702) 564-4368.  The Nevada Chapter of the National Hemophilia Foundation is located at 7473 Lake Mead Blvd., Suite 100, Las Vegas, NV 89128.

Attendees will enjoy a light pre-walk breakfast, music, fun activities for the children and a team t-shirt contest.  There is free admission and parking for all attendees.

An enthusiastic start to last year's Hemophilia Walk organized by the Nevada Chapter of the National Hemophilia Foundation. This year's walk is scheduled for Saturday, September 21, 2013 at Floyd Lamb Park 9200 Tule Springs Rd. (near Durango and Racel St)  To register for the walk go to http://www.hemophilia.org/walk/.
An enthusiastic start to last year’s Hemophilia Walk organized by the Nevada Chapter of the National Hemophilia Foundation. This year’s walk is scheduled for Saturday, September 21, 2013 at Floyd Lamb Park 9200 Tule Springs Rd. (near Durango and Racel St) To register for the walk go to http://www.hemophilia.org/walk/.