THE NEVADA CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION TO HOST 18th ANNUAL CAMP INDEPENDENT FIREFLY IN CONJUNCTION WITH CANDLELIGHTERS CHILDHOOD CANCER FOUNDATION OF NEVADA
LAS VEGAS – June 1, 2021 – Camp Independent Firefly is back! As a cornerstone service for the Nevada Chapter of the National Hemophilia Foundation, the premier camp program for youth affected by bleeding disorders will take place as a virtual experience June 15-18, 2021. The four day camp is designed to allow children with special medical needs the opportunity to experience a variety of traditional camp activities.
Camp Independent Firefly will feature activities such as at-home projects with supplies shipped to campers ahead of time, live video conferencing sessions with their ‘cabins,’ fun games and learning activities led by trained counselors. This camp gives children and siblings in Nevada ages 7 to 17 who are affected by inherited blood disorders, a chance to gain confidence, learn communication skills and experience joy among their peers. Held in conjunction with Candlelighters Childhood Cancer Foundation of Nevada, Camp Independent Firefly also serves children and siblings affected by cancer. Thanks to generous contributions and volunteers from the community, the camp is offered at no charge to families.
Camp Independent Firefly would not be possible without passionate donors and sponsors. The Nevada Chapter of the National Hemophilia Foundation kindly ask the community to get involved by donating to the camp or sponsoring a child to attend this year. Information about how to give the gift of confidence, belonging, and joy to a child affected by a blood disorder can be found at https://hfnv.org/get-involved/give.html
The Nevada Chapter of the National Hemophilia Foundation works year round to provide a camp experience that is safe, fun and educational. Because every child at camp will be affected by bleeding disorders or cancer in some way, they can easily feel accepted and part of a group. The supportive environment at camp becomes a perfect place to learn skills to navigate living with a major medical condition.
About the Nevada Chapter of the National Hemophilia Foundation
Founded in 1990, the Nevada Chapter of the National Hemophilia Foundation is dedicated to finding cures for inheritable blood disorders and addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive. Donations stay right here in Nevada, providing family services, youth development, and emergency funds to help patients reach a productive, pain-free and independent future. Over 300 volunteers annually support more than 30 programs and events like Camp Independent Firefly and the Unite for Bleeding Disorders Walks. Additional information on the NHFNV can be found at www.hfnv.org and social media @NevadaNHF on Instagram or Twitter and @NVNHF on Facebook.
About Candlelighters Childhood Cancer Foundation of Nevada
Candlelighters Childhood Cancer Foundation of Nevada is the first and oldest nonprofit organization in Nevada serving children, from birth to 21 years old, and families coping with childhood cancer. Its mission is to provide emotional support, quality of life programs, and financial assistance for children and their families affected by childhood cancer. Since its establishment more than 40 years ago, Candlelighters has helped thousands of families, and now serves nearly 400 families and more than 1,000 children (diagnosed child and sibling combined) per year. For information, visit www.candlelightersnv.org.
