Las Vegas community rallies together to help raise awareness and provide support to Nevada Chapter of National Hemophilia Foundation with a variety of fun events all March for Bleeding Disorders Awareness Month
Local charity announces monthlong activities and partners including Vitalant Blood Drive, REAL BODIES, Shake Shack and Panda Express
Help raise awareness for bleeding disorders while joining in a variety of activities throughout the month to support the Nevada Chapter of National Hemophilia Foundation during Bleeding Disorders Awareness Month. More than 3 million Americans have a bleeding disorder, such as hemophilia, von Willebrand disease, or rare factor deficiencies. These disorders prevent an individual’s blood from clotting normally; can result in extended bleeding after injury, surgery or trauma; and can be fatal if not treated effectively. In Nevada it is estimated that more than 30,000 people have a bleeding disorder, often undiagnosed or misdiagnosed.
All March – REAL BODIES at the Horseshoe Las Vegas
REAL BODIES at the Horseshoe Las Vegas is donating $1 from every ticket purchased online in March to the Nevada Chapter of the National Hemophilia Foundation. REAL BODIES is a powerful exhibition presenting a stunning display of more than 20 real, perfectly preserved human bodies and more than 200 anatomical specimens, pushing boundaries while seamlessly blending art, science, and emotion as a museum of the self. For additional information or to purchase tickets, please visit RealBodiesVegas.com.
Wednesday, March 1 – Shake Shack donation day
The District at Green Valley Ranch and Downtown Summerlin
Shake Shack’s Henderson and Summerlin locations will donate 25-percent of the total meal purchased back to the Nevada Chapter. Guests just need to mention “Donation Day” at the register or can use code DONATIONDAY25 on the Shack App whether dining in, picking up or ordering delivery. It is valid at the Summerlin location from 10:30 AM-10 PM or at the Henderson location from 10:30 AM-9 PM. To order online, go to ShakeShack.com and use code DONATIONDAY25 for purchases on March 1, 2023.
Thursday, March 16 – Panda Express donation day
It’s a virtual fundraiser with Panda Express, available at all locations across the country. Supporters of the Nevada Chapter can order online up to a week in advance for a meal on March 16 and Panda Express will donate 28-percent of event sales back to the organization. To order online, go to pandaexpress.com and use code 913800 for purchases on March 16, 2023.
Tuesday, March 21 – Vitalant Blood Drive
The Nevada Chapter has teamed up with Vitalant to host a blood drive to raise awareness and help combat the blood shortage with a blood drive from the Nevada Chapter’s office parking lot located off South Rainbow Boulevard, just north of Alta Drive in the Rainbow Express Shopping Center. The Nevada Chapter’s office is located at 222 So. Rainbow Blvd. The blood drive will be from 10 AM-2 PM and donors can register now at https://donors.vitalant.org and enter the code: 10054009.
The Better You Know
Bleeding disorders are rare and often inherited, however it’s anticipated that there are more than 30,000 people living in Nevada with an undiagnosed bleeding disorder. Symptoms of a disorder may also include frequent or prolonged bleeding, excessive bruising, prolonged, heavy menstrual periods (menorrhagia), unexplained nosebleeds or extended bleeding after minor cuts, blood draws or vaccinations, minor surgery or dental procedures. Sometimes the bleeding is spontaneous, without a known or identifiable cause. Improper clotting can be caused by defects in blood components such as platelets and/or clotting proteins, also called clotting factors. If you think you may have symptoms of a bleeding disorder, your life can be better if you know. Find out if you are at risk and take the first step in feeling better at betteryouknow.org. The Nevada Chapter of NHF is here to provide additional support and information; contact them at HFNV.org.
The Nevada Chapter of the National Hemophilia Foundation provides services for individuals and families living with bleeding disorders, a group of disorders that share the inability to form a proper blood clot, include hemophilia, von Willebrand disease, and rare factor disorders. Improper clotting can be caused by defects in blood components such as platelets and/or clotting proteins, also called clotting factors. Bleeding disorders are characterized by extended bleeding after injury, surgery, trauma, or menstruation. Currently, there are no cures for bleeding disorders, and treatments vary depending on their severity. For some bleeding disorders, there are clotting factor concentrates that can be infused prophylactically or on-demand at home, to prevent or treat bleeds. The Nevada Chapter partners with the Hemostasis and Thrombosis Center of Nevada, other agencies, and medical professionals to provide programs and services unique to those with bleeding disorders to best meet their needs.
Throughout March, the Nevada Chapter will be hosting events for their bleeding disorders community including a Mental Health Break event that teaches how to support one’s own mental well-being, NASCAR tickets with their partner Las Vegas Speedway Children’s Charities and a Spring Education Weekend.
Bleeding disorders are life-threatening, debilitating, and expensive to treat. A child with severe hemophilia will spend over $200,000 annually to prevent bleeding. Some children and adults build up inhibitors to the treatment and the costs can exceed $1,000,000 per year. Failure to preventatively treat the disorder can result in prolonged painful bleeds that cause permanent and severe damage. The entire family is affected by the bleeding disorder physically, emotionally, and financially. With more than 30 years of experience, the Nevada Chapter of National Hemophilia Foundation provides programs and services to people affected by bleeding disorders so that they can better cope and can become self-advocates for themselves and/or their family.
About the Nevada Chapter of the National Hemophilia Foundation
Founded in 1990, the Nevada Chapter of the National Hemophilia Foundation is dedicated to finding cures for inheritable blood disorders and addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive. Donations stay right here in Nevada, providing family services, youth development, and emergency funds to help patients reach a productive, pain-free and independent future. More than 300 volunteers annually support more than 30 programs and events like Camp Independent Firefly and the Unite for Bleeding Disorders Walks. Additional information on the Nevada Chapter can be found at www.hfnv.org and social media @NevadaNHF on Instagram or Twitter and @NHFNV on Facebook.
