Hemophilia Walks in Las Vegas and Reno Raise $64,000 for Bleeding Disorders Community

 

Hemophilia Walks in Las Vegas and Reno Raise $64,000 for

Nevada’s Inherited Bleeding Disorders Community

 

Thanks to nearly 600 walkers and runners that participated in this year’s Hemophilia Walks and 5K events in both Las Vegas and Reno, the Nevada Chapter of the National Hemophilia Foundation was able to raise more than $64,000 to help those with bleeding disorders in Nevada.

Funds from the walks allow the chapter to offer a number of important programs and to support children and adults living with hemophilia and other bleeding disorders. A portion of the funds will also be used to send children with bleeding disorders and their siblings to a medically supervised summer camp known as Camp Independent Firefly.  The camp allows kids with bleeding disorders to attend and participate in outdoor activities while having medical personnel nearby in case they are needed.

“The walks are our largest events each year and every year it keeps getting bigger and bigger,” said Betsy VanDeusen, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “We cannot thank the walkers and runners enough for their support in helping ensure the children in Nevada who live with bleeding disorders every day, receive the attention and medical supplies that they desperately need.”

This year’s top fundraising teams include:

Reno

Top Individual – Amanda Bradhurst – $350

Top Teams:  HTC All Stars $790; Genentech $650

 

Las Vegas

Top Individual – Stephanie Hrisca-Kennedy $2,130

Top Virtual Walker – Emanuel Sas $2,605

Top Team: Team Emily & AJ – $9308

 

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About the Nevada Chapter of the National Hemophilia Foundation

The mission of the Nevada Chapter of the National Hemophilia Foundation is to improve the quality of care and quality of life for people with hemophilia, von Willebrand Disease and other inherited bleeding disorders. Founded in 1990 as the nonprofit Hemophilia Foundation of Nevada, the chapter merged with the National Hemophilia Foundation in 2011.  It is the only educational, advocacy and support organization working on behalf of Nevada’s inherited bleeding disorder community. Services provided by the chapter include emergency financial assistance, sponsorship of seminars on issues important to the bleeding disorders community, dissemination of information as well as awareness of the complications of the disease to the general public, media and healthcare providers. In addition, the chapter publishes a newsletter to keep members better informed. Additional information can be found at www.hfnv.org or by calling (702) 564-4368.

Nevada Walk & 5K for Hemophilia On September 27 In Las Vegas and Reno

Nevada Walk

National Hemophilia Foundation

Nevada Walk & 5K for Hemophilia On September 27 In Las Vegas and Reno

For the first time in its history, The Nevada Chapter of the National Hemophilia Foundation will host two Hemophilia Walks on the same day to help raise critical funds and awareness for those Nevadans affected by inherited bleeding and clotting disorders including Hemophilia and von Willebrand disease.

A one mile walk and 5K are scheduled in Las Vegas and Reno on September 27, 2014 with goals to raise at least $50,000 in each city. This will be the first ever Hemophilia Walk held in Reno.

The Nevada Chapter of the National Hemophilia Foundation (NHF Nevada), a 501(c)(3) nonprofit organization, will use the funds raised to send children with inherited bleeding disorders to a special medically supervised camp at no cost. Additional funds will also support ongoing programs that include support groups for the newly diagnosed and their families, a youth support group dealing with the challenges of managing their condition, and financial assistance programs to help provide medicine and basic living needs.

“We’re committed to helping those with inherited bleeding disorders and their families no matter where they are in Nevada and these walks are essential to complete that mission” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “It’s exciting to organize our first walk in Reno and to keep the momentum going in Las Vegas where our walk has received incredible support.”

The Las Vegas Hemophilia Walk & 5K begins at 8:30 a.m., on-site registration at 7:30 a.m., at Floyd Lamb Park at Tule Springs, 9200 Tule Springs Road, Las Vegas, 89131. Registration is now open at www.hfnv.org or by calling (702) 564-4368.

The Reno Hemophilia Walk & 5K begins at 10:00 a.m., on-site registration at 9:00 a.m., at Virginia Lake Park, 1980 Lakeside Drive, Reno, 89509. Registration is now open at www.hfnv.org or by calling (702) 564-4368.

Both walks are sponsored by the Hemophilia Treatment Center of Nevada which provides diagnosis, treatment, medical referrals and comprehensive clinics to all people with inherited bleeding and clotting disorders in Las Vegas, Reno and throughout the state. It is the only federally recognized hemophilia treatment center in the state.

NHF Nevada was founded in 1990 and helps meet the vast education and support needs of the bleeding disorders community in Nevada. There are approximately 20,000 people living with Hemophilia in the United States. It is an expensive disease where life-long management of Hemophilia places a large financial burden on individuals and families. Additionally, NHF Nevada provides services to those affected by von Willebrand disease, which also prevents from clotting, and clotting disorders such as Thrombophilia, which causes the blood to clot excessively. Every dollar raised at this event will help the bleeding disorder community in Nevada.

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The 2013 Hemophilia Walk & 5K in Las Vegas raised more than $50,000, a record for the Nevada Chapter of the National Hemophilia Foundation.  The nonprofit organization provides education, advocacy, and many types of assistance to those with inherited bleeding and clotting disorders such as Hemophilia and von Willebrand disease.The 2014 Hemophilia Walk & 5K will take place on September 27, 2014 in Las Vegas. For the first time the foundation is also holding a walk in Reno on the same day. For additional information, www.hfnv.org.
The 2013 Hemophilia Walk & 5K in Las Vegas raised more than $50,000, a record for the Nevada Chapter of the National Hemophilia Foundation. The nonprofit organization provides education, advocacy, and many types of assistance to those with inherited bleeding and clotting disorders such as Hemophilia and von Willebrand disease.The 2014 Hemophilia Walk & 5K will take place on September 27, 2014 in Las Vegas. For the first time the foundation is also holding a walk in Reno on the same day. For additional information, www.hfnv.org.