Golf 4 The Kids Tournament June 1, 2015 at Red Rock Country Club

golf 4 the kids

Golf 4 The Kids Tournament June 1, 2015 at Red Rock Country Club

ford

cslbaxternovocure for kids

 

 

 

 

 

It’s back! The third annual Golf 4 The Kids Tournament will take place at Red Rock Country Club where golfers will play on the scenic and exclusive fairways of the club’s private Mountain Course on Monday, June 1, 2015. Best of all, tournament proceeds will benefit two local nonprofit organizations.

We’re pleased to announce professional golfer, teaching instructor and inherited bleeding disorders spokesperson, Perry Parker, will again serve as host and play in the tournament.

The event is open to 144 golfers who are encouraged to reserve their spot early by calling (702) 732-0952 or by emailing Dawn Marie Pavuk at dmpavuk@cure4thekids.org. Information is also available about a range of sponsorship opportunities.

Golfers will enjoy 18 holes on one of Arnold Palmer’s Signature courses offering panoramic cityscapes and towering mountain views. In addition to 18 holes, golfers are invited to take part in several contests including Longest Drive, Closest to the Hole, Putting Contest and Million Dollar Hole in One. In addition, Ford Country in Henderson is donating the three year lease of a new Mustang Coupe to the golfer who gets a hole in one on the designated hole within the tournament.

The tournament will support the worthwhile efforts of two valuable nonprofit organizations who provide unmatched services to Nevada’s children affected by cancer and inherited bleeding disorders.

During last year’s successful tournament, more than $46,000 was raised and split equally between the Nevada Chapter of the National Hemophilia Foundation (NHF Nevada) and Cure 4 The Kids Foundation, both of which are 501(c)(3) nonprofit organizations.

NHF Nevada used those funds to send a number of kids with hemophilia and von Willebrand disease to a special medically supervised summer camp for free.

“Treating inherited bleeding disorders is unlike many other diseases—there is no cure,” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “Because these are lifelong conditions and treatment requires expensive drugs to prevent life-threatening bloods, we need to do all we can to support this community.”

Cure 4 The Kids Foundation used the funds to support its Charity Care Program which provides life saving treatment to children with cancer and other diseases, who are without medical insurance or the ability to pay for treatment.

“Unfortunately, kids are affected by cancer everyday and the disease does not choose only those families who can pay for treatment,” said Annette Logan, President and Chief Executive Office of Cure 4 The Kids Foundation. “Our Charity Care Program allows us treat any child with cancer and never have to turn anyone away.”

Golf 4 The Kids would not be a success without the dedication and support of many community minded sponsors. Our returning sponsors include: Gold Sponsor: CSL Behring; Bronze Sponsors: Novo Nordisk, Baxter and the Hemophilia Treatment Center of Nevada.

Red Rock County Club’s private Mountain Course is a 7001-yard, par 72 course.

Cure 4 The Kids Twitter
NHF Nevada Twitter
Cure 4 The Kids Facebook
NHF Nevada Facebook

Cure 4 the Kids Foundation provides treatment to children in Nevada facing life-threatening diseases such as cancer, inherited bleeding disorders, rheumatological and genetic conditions regardless of family income or presence of medical insurance. Through its two programs, The Children’s Specialty Center of Nevada and the Hemophilia Treatment Center of Nevada, thousands of patients have received treatment, some at no cost. www.cure4thekids.org

The Nevada Chapter of the National Hemophilia Foundation is Nevada’s only bleeding disorders advocacy organization. The foundation serves more than 600 families throughout Nevada offering a children’s summer camp, ongoing education programs, support groups and advocacy efforts on behalf of clients. www.hfnv.org

Nevada Advocacy Day Brings Awareness of Inherited Bleeding Disorders to Nevada Lawmakers

Nevada Advocacy Day

Nevada Advocacy Day Brings Awareness of
Inherited Bleeding Disorders to Nevada Lawmakers

 

More than 30 children, teenagers and adults who live with inherited bleeding disorders such as hemophilia and von Willebrand Disease will meet with state legislators during Nevada Advocacy Day, on Thursday, February 5, 2015.

The face to face meetings coordinated by the Nevada Chapter of the National Hemophilia Foundation (NHF Nevada) help educate legislators and their staff on the unique concerns of those who rely on expensive medication to prevent life threatening bleeds. NHF Nevada representatives will also educate lawmakers on the long-term health affects from inherited bleeding disorders. Those with an inherited bleeding disorder lack a protein that allows their blood to clot normally. Those with severe forms of the disorder can require an infusion of medicine on a daily basis, leading to devastating financial consequences.

“There are many legislators who are unaware of the cost and long-term implications for those affected by inherited bleeding disorders,” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “There are several newly elected lawmakers and we hope to meet with each one of them on Nevada Advocacy Day.”

Approximately 2800 Nevadans are affected by hemophilia or von Willebrand Disease. Von Willebrand disease is considered the most common inherited bleeding disorder and as many as one in 50 people have the disease and don’t know it or won’t know it until they suffer a traumatic event resulting in blood loss.

This is the second annual Nevada Advocacy Day and will bring those with inherited bleeding disorders to the state capitol who represent the following cities: Las Vegas, Henderson, North Las Vegas, Carson City, Fernley and Dayton.

2013 Nevada Advocacy Day

NHF Nevada was founded in 1990 and helps meet the vast education and support needs of the bleeding disorders community in Nevada. There are approximately 20,000 people living with hemophilia in the United States. It is an expensive disease where life-long management of hemophilia places a large financial burden on individuals and families. Additionally, NHF Nevada provides services to those affected by von Willebrand disease, which also prevents blood from clotting, and clotting disorders such as Thrombophilia, which causes the blood to clot excessively. www.hfnv.org

@NVHemophilia
https://www.facebook.com/NHFNV

Nevada Chapter of the National Hemophilia Foundation Surpasses 2014 Walk & 5K Fundraising Goal!

Hemophilia

Nevada Chapter of the National Hemophilia Foundation Surpasses 2014 

Walk & 5K Fundraising Goal!

Nevada’s 2014 Hemophilia Walk and 5K is the Chapter’s Most Successful

The 2014 Hemophilia Walk and 5K will go into the record books! For the first time in Nevada, due to the overwhelming support of sponsors and walk teams, the Nevada Chapter of the National Hemophilia Foundation’s Hemophilia Walk & 5K surpassed the $50,000 fundraising mark!  Additionally, this was the first year a Hemophilia Walk and 5K was also held in Reno.

“It has been incredible to see the support and awareness of our walk, and our mission, grow in the state of Nevada,” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “We serve the entire state so these funds will benefit those in Las Vegas and Reno and the smaller communities we serve including Winnemucca, Ely and Elko.”

More than 400 people attended the Las Vegas event at Floyd Lamb Park at Tule Springs and 130 attended Reno’s first Hemophilia Walk at Virginia Lake Park.

In Las Vegas, Team Emily & AJ, along with Team Captain Alison Bartko, were recognized as the Top Fundraising Team for raising more than $8,000 in contributions for the walk. Team Emily & AJ is named after Alison’s children, both of whom have severe Hemophilia.

Funds raised will be used in a number of ways.  Every year, the Nevada Chapter of the National Hemophilia Foundation sends children with an inherited bleeding disorder and their siblings, to a medically supervised camp at no cost.  The kids learn many things about their disease, how to manage it and how to gain independence in spite of their condition. They also get the chance to have fun in an outdoor setting with those who understand their disease. Funds will also be used to underwrite support groups for the newly diagnosed and their families.

Those with inherited bleeding disorders such as Hemophilia and von Willebrand disease, lack a protein which allows their blood to clot normally. Depending on the severity of their condition, those affected rely on infusions of “factor” given daily, weekly or as needed to stop or prevent a devastating blood loss.

Both walks were sponsored by the Hemophilia Treatment Center of Nevada which provides diagnosis, treatment, medical referrals and comprehensive clinics to all people with inherited bleeding and clotting disorders in Las Vegas, Reno and throughout the state.  It is the only federally recognized hemophilia treatment center (HTC) in the state.

NHF Nevada was founded in 1990 and helps meet the vast education and support needs of the bleeding disorders community in Nevada. There are approximately 20,000 people living with Hemophilia in the United States. It is an expensive disease where life-long management of Hemophilia places a large financial burden on individuals and families. Additionally, NHF Nevada provides services to those affected by von Willebrand disease, and clotting disorders such as Thrombophilia, which causes the blood to clot excessively. Every dollar raised at this event will help the bleeding disorder community in Nevada. 

Hemophilia Walk & 5K 2014

 

Nevada Walk & 5K for Hemophilia On September 27 In Las Vegas and Reno

Nevada Walk

National Hemophilia Foundation

Nevada Walk & 5K for Hemophilia On September 27 In Las Vegas and Reno

For the first time in its history, The Nevada Chapter of the National Hemophilia Foundation will host two Hemophilia Walks on the same day to help raise critical funds and awareness for those Nevadans affected by inherited bleeding and clotting disorders including Hemophilia and von Willebrand disease.

A one mile walk and 5K are scheduled in Las Vegas and Reno on September 27, 2014 with goals to raise at least $50,000 in each city. This will be the first ever Hemophilia Walk held in Reno.

The Nevada Chapter of the National Hemophilia Foundation (NHF Nevada), a 501(c)(3) nonprofit organization, will use the funds raised to send children with inherited bleeding disorders to a special medically supervised camp at no cost. Additional funds will also support ongoing programs that include support groups for the newly diagnosed and their families, a youth support group dealing with the challenges of managing their condition, and financial assistance programs to help provide medicine and basic living needs.

“We’re committed to helping those with inherited bleeding disorders and their families no matter where they are in Nevada and these walks are essential to complete that mission” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “It’s exciting to organize our first walk in Reno and to keep the momentum going in Las Vegas where our walk has received incredible support.”

The Las Vegas Hemophilia Walk & 5K begins at 8:30 a.m., on-site registration at 7:30 a.m., at Floyd Lamb Park at Tule Springs, 9200 Tule Springs Road, Las Vegas, 89131. Registration is now open at www.hfnv.org or by calling (702) 564-4368.

The Reno Hemophilia Walk & 5K begins at 10:00 a.m., on-site registration at 9:00 a.m., at Virginia Lake Park, 1980 Lakeside Drive, Reno, 89509. Registration is now open at www.hfnv.org or by calling (702) 564-4368.

Both walks are sponsored by the Hemophilia Treatment Center of Nevada which provides diagnosis, treatment, medical referrals and comprehensive clinics to all people with inherited bleeding and clotting disorders in Las Vegas, Reno and throughout the state. It is the only federally recognized hemophilia treatment center in the state.

NHF Nevada was founded in 1990 and helps meet the vast education and support needs of the bleeding disorders community in Nevada. There are approximately 20,000 people living with Hemophilia in the United States. It is an expensive disease where life-long management of Hemophilia places a large financial burden on individuals and families. Additionally, NHF Nevada provides services to those affected by von Willebrand disease, which also prevents from clotting, and clotting disorders such as Thrombophilia, which causes the blood to clot excessively. Every dollar raised at this event will help the bleeding disorder community in Nevada.

@NVHemophilia
https://www.facebook.com/NHFNV

The 2013 Hemophilia Walk & 5K in Las Vegas raised more than $50,000, a record for the Nevada Chapter of the National Hemophilia Foundation.  The nonprofit organization provides education, advocacy, and many types of assistance to those with inherited bleeding and clotting disorders such as Hemophilia and von Willebrand disease.The 2014 Hemophilia Walk & 5K will take place on September 27, 2014 in Las Vegas. For the first time the foundation is also holding a walk in Reno on the same day. For additional information, www.hfnv.org.
The 2013 Hemophilia Walk & 5K in Las Vegas raised more than $50,000, a record for the Nevada Chapter of the National Hemophilia Foundation. The nonprofit organization provides education, advocacy, and many types of assistance to those with inherited bleeding and clotting disorders such as Hemophilia and von Willebrand disease.The 2014 Hemophilia Walk & 5K will take place on September 27, 2014 in Las Vegas. For the first time the foundation is also holding a walk in Reno on the same day. For additional information, www.hfnv.org.

Golf 4 The Kids Tournament Benefits Two Non Profit Organizations

Golf 4 The Kids

Golf 4 The Kids At TPC Las Vegas May 17

Benefits Nevada Chapter of the National Hemophilia Foundation and
Cure 4 The Kids Foundation

It’s the perfect reason to golf at one of the country’s premier courses – TPC Las Vegas!

Golf 4 The Kids, happening May 17, 2013, will benefit Cure 4 The Kids Foundation and the Nevada Chapter of the National Hemophilia Foundation – both 501(c) 3 nonprofit organizations.

Golf 4 The Kids will offer golfers a chance to experience the premier PGA TOUR facility in Las Vegas, featuring its unique “desert elegance” as well as the stunning backdrop of Red Rock Canyon.

Designed by noted golf course architect Bobby Weed, with World Golf Hall of Famer Raymond Floyd serving as a consultant, TPC Las Vegas’ superb par-71, 7,081 yard championship layout features lush green parcels of manicured turf woven through a rugged tapestry of arroyos, barrancas and undisturbed desert washes, highlighted by dramatic vistas and an abundance of risk/reward challenges.

The Home of Professional Golf in Las Vegas, TPC Las Vegas is part of the PGA TOUR’s award winning TPC Network – a premier collection of destination, private and resort golf clubs which have played host to more than 350 professional golf tournaments. For more than 30 years, TPC courses have brought the magic of the PGA TOUR to life offering members and guests the unique opportunity to test their skills on the same magnificent layouts where the world’s best players compete.

The tournament is limited to 144 golfers who may register at www.golf4thekids.org. The tournament will feature a million dollar hole in one, closest to the pin, longest drive and putting contests as well as many raffle prizes. Proceeds from the tournament will be split equally between Cure 4 The Kids Foundation and the Nevada Chapter of the National Hemophilia Foundation.

Cure 4 the Kids Foundation provides treatment to children in Nevada facing life-threatening diseases such as cancer, inherited bleeding disorders, rheumatological and genetic conditions regardless of family income or presence of medical insurance. Through its two programs, The Children’s Specialty Center of Nevada and the Hemophilia Treatment Center of Nevada, thousands of patients have received treatment, some at no cost.

The Nevada Chapter of the National Hemophilia Foundation is Nevada’s only bleeding disorders advocacy organization. The foundation serves more than 600 families throughout Nevada offering a children’s summer camp, ongoing education programs and advocacy efforts on behalf of clients.

Registration form (download)